A Ceremony, An Extraordinary Friend And The Uncertain Future Ahead

As I mentioned previously, this is a continuation of my sister's story. I watched from one of the back rows on the opposite side of the room from her. I couldn’t see her but I knew and felt her emotions in this moment. As she would always say, she’d sometimes fall into some feelings. Well … Continue reading A Ceremony, An Extraordinary Friend And The Uncertain Future Ahead

Confirmation That We’re All Just Dollars And Cents…Mostly Cents

Lea was admitted in June some time, maybe a month or so after the PleurX catheter had been placed. She had been having issues with pain and asked to be prescribed medical marijuana because she didn’t want to take or rely solely on opioids. Her oncologist had her on Morphine but Lea didn’t like how … Continue reading Confirmation That We’re All Just Dollars And Cents…Mostly Cents

What Careening Down Mount Everest, Both Ways, In A Wagon With No Brakes And No Steering Looks Like

Once radiation was complete, Lea was to continue taking her Afatinib as prescribed. She had to stop prior to and throughout her radiation treatments but had managed to find 2 interesting studies on drug holidays. Both were very small studies with very few people (maybe 14 in one and 22 in the other…not entirely certain). … Continue reading What Careening Down Mount Everest, Both Ways, In A Wagon With No Brakes And No Steering Looks Like

Why The First Year Of Treatment With Afatinib Was The Honeymoon Phase

It was a good run…while it lasted. Once the holidays had ended, Lea’s first scan since starting the Afatinib became the much anticipated, yet nerve wracking event to take center stage in all of our lives. We were collectively holding our breath until we had results in hand. We had plenty of hope, but the … Continue reading Why The First Year Of Treatment With Afatinib Was The Honeymoon Phase

Celebrating The Holidays With The Ever Crotchety Auntie Cancer And The Very Creepy Uncle Death

So, just how did we celebrate the holidays with the constant threat of cancer and death looming over us? Well, it wasn’t easy. I feel like I had to morph into a spy who utilized secret codes and gestures to communicate, while feeling like I needed to protect my family within the presence of some … Continue reading Celebrating The Holidays With The Ever Crotchety Auntie Cancer And The Very Creepy Uncle Death